Happy New Year!


As per usual my post-holiday update came a little later than I’d intended. But here it is, better late than never! :)

Christmas was really good this year, if not a bit hectic – not in a bad way though. My brother and his girlfriend came from Alberta to stay with us for the holidays  and it was nice to have them here for Christmas. It had been quite a while since the last time I saw either of them. I guess I can officially announce that I’m going to be an auntie this April! I’m really excited, but I wish that they lived closer. As it is now with my health issues and my brother’s job we only get to see each other a few times a year.

Never one for good timing; I spent the entire holiday season in the midst of a major chronic illness flare. I don’t know why it happens but it seems to be a fairly common thing with people who have tissue disorders; I go through these bouts where my pain and dislocations dramatically increase for a while before eventually calming down again. I also spent the week of Christmas in the midst of one of my insomniac phases and sleep was not a friend of mine. Now I’m the exact opposite; no matter how long or often I sleep I’m still so tired that I can barely keep my eyes open. Today I feel like maybe it’s lifting and I’m hoping that it was just a bit of the flu and I’m starting to get over it now. I’d like a happy medium, in between the two sleep extremes.


I ended up with another painful rib dislocation on Christmas evening. My ribs had been really loose and sore all day but playing with (actually, more like being jumped on by) my little cousin seemed to seal the deal. Next time I think I’ll have to be a little more stern when it comes to not letting her be so rough with me. I hate being a killjoy and usually end up trying to ignore my limits instead, which I honestly prefer. That time I paid for it though.

I was really sad and bummed out about the whole thing and the amount of pain that it caused. Of all the days that it could have happened it just had to be on Christmas. And as always with dislocations, I was afraid of how long it would last this time. Thankfully my pain medication helped quite a bit and the major depression that I felt about going through another round of rib dislocation lifted. Luckily for me it went back into place while I was sleeping after only a few days instead of taking a few weeks like it has in the past. Yay!

I didn’t get any family photos this year like I had wanted to do but there’s always next year. I can’t believe it’s 2014 already! It feels like time is just flying by without me sometimes. I spent New Year’s eve enjoying some mellow time at the house listening to music, cooking some pizza and un-decorating the tree. Aside from my sky-high pain levels I quite enjoyed myself. I think my flare-up is finally passing and my body seems to have calmed down quite a bit.

There was more that I wanted to say but I think I’ll have to save it for next time because I feel a huge wave of sleepiness coming over me and my thinking was scrambled already. I’ll post again soon, for now I really just wanted to get this published and say happy 2014!

Love you all and as always; thanks for everything! ♥

Hello 2013

I just realized I haven’t posted anything since before the new year!

I hope you’re all well and that your holiday season was filled with love and joy. I haven’t been writing much at all, partly because I hurt my back and it was getting to the point where I could barely make it out of bed without screaming out in pain. It’s improved enormously in the last two days though, so I’m not complaining! In fact I’m quite happy about it!

Mentally I’m in a reasonably peaceful place right now. I feel hopeful that this year will be better than the last one. I have a list of things that I’d like to accomplish by the end of 2013 that I’ll post as soon as I’m finished. Some of my goals may seem trivial but sometimes even small achievements seem major when just waking up can be a challenge.

On a more somber note: our Marfamily (Marfan-family) as we’ve fondly come to know it, has recently taken a very painful and heartbreaking blow. One of our beautiful, precious Marfan babies; Teddy, has passed away. He was not even a year old yet and he had already endured two heart surgeries. If you have prayers to spare I ask that you direct them toward his family, whose pain I cannot even begin to imagine. If only words and prayers could ease such a pain for them. My heart, love and thoughts are with them at this time. And Teddy, you remind me to be brave and to cherish my moments on this Earth.

Winter Sky by Anna Fischer