Marfan Syndrome Awareness Month – Marfact #1

February is Marfan Syndrome awareness month! Just like last year, in order to raise awareness I’ll be posting a Marfact a day – provided by the wonderful Marfan Foundation (formerly called the National Marfan Foundation).

The Friendship Circle also put together a really great list of 12 Resources For Marfan Syndrome Awareness Month. I’m really honored to say that they included this blog as one of the resources listed! A huge thanks to them for that and for helping raise awareness!

Marfan Syndrome affects approximately 1 in 5,000 people, and it’s estimated that half of those people are unaware that they have the disorder. Sadly, when MFS goes un-diagnosed it puts you at risk of a sudden, early, and other-wise preventable death. That’s why it’s so important to raise awareness and help educate people on the signs and symptoms. Awareness really can save lives!

Marfact #1: Marfan Syndrome is a life‐threatening genetic disorder that affects many body systems, most notably the heart and blood vessels, the bones and the eyes.

To learn more visit:


The photo above was released by the Marfan Foundation for use as a profile picture during Marfan Awareness Month. Feel free to download it and use it as your social media profile picture.

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