I know it’s been a terribly long time since I’ve done a proper post! I’ve got a few updates. My mom and I recently made the annual 9 hour trip to Vancouver for my cardio checkup. This year we went to St. Paul’s Hospital to meet my new “adult” cardiologist.
The bus ride was pretty painful. We take the health bus (it’s only 40$ each way which is a huge financial help). Though it may be a health bus but it’s terribly uncomfortable. My tailbone dislocated towards the end of the trip so by the time we got there I was about at my limit and super happy it was over.
Appointment day was pretty rough too. We started at 8:30 in the morning with my echocardiogram which is always a bit painful because of my rib problems. Next was my chest x-ray at 10 and my chest CT at 10:30 (so much radiation!!). We ended up waiting for over two hours for that and missed my ECG appointment altogether (they said not to leave for it because the CT was more important). They finally got my IV in for the contrast dye and I thought we were ready to go but then we had to wait some more.
Finally we just had to tell them I was supposed to meet my cardiologist in a few minutes so we had to get the CT done. We met with a nurse who asked us some questions and then we met with a resident doctor who asked a few more and listened to my heart. Then we finally met my cardiologist. The news was wonderful; my aorta hasn’t grown anymore since last year! She also said it would be okay for me to stop taking my beta blockers which I must say made me quite happy! We only spoke to the doc for a few minutes in total. Generally she seemed likable but I still have such a hard time trusting doctors after all of the times they’ve failed me.
I requested all of the records of the appointment – it’s been recommended that I start doing that at every appointment from now on. So that if need be I can send them to an EDS-MFS knowledgeable specialist or take them with me in an ER situation. In the end we didn’t get back to the hotel room until 3:30 pm. It was a hectic day of running around and being poked and prodded.
I enjoy our little stays in the big city (once I get over my home sickness, which I’m really bad for the first bit). I like the isolation of being disconnected from our usual boring lives and not having a computer or all of my possessions. It’s kind of like a little break from reality (aside from the medical appointments). We don’t generally do much when we’re there because neither of us ever feel too good. Shopping and sightseeing is no fun when you’re body is screaming at you so apart from walking to the grocery store for the necessities we don’t go out a whole lot. We’ve been going there for appointments since I was four so it’s kind of like a second home and it’s not too exciting anymore.
All of that aside there’s a little art store call ArtRyan next to the grocery store. I have to go there when we’re in the city, it’s my kryptonite. We don’t have an art store where I live so it’s like heaven. It’s the only place I can get good, reasonably priced supplies. And it’s a small locally owned business. The owner is a very kind man who himself is an artist with a studio in back. He gives me good tips and advice on the things I’m looking for and he really knows his stuff. It’s nice when you do spend money knowing it’s supporting someone like that.
The bus ride home was particularly rough. It’s been a week and I’m still sore from it. But hey, I’m back home now with good news, a nasty IV bruise and some awesome, much needed art supplies. Apart from that it’s like we never left!