The Marfan Foundation’s Annual Conference

This post is for anyone from the British Columbia area (and maybe Alberta depending on where) who would like to attend the Marfan Foundation‘s annual conference in July but has no way of getting there.

 The Shriner’s bus has said they would likely drive us from Vancouver (British Columbia) to Portland for the conference and then back home. The bus is free and very comfortable (big cushy recliners) for those with pain issues. There’s also a bathroom and a microwave. They said if anyone else would like to go to the conference that they would without a doubt, 100%, make the trip. So for anyone who would like to go but has no way of getting there this may be the perfect opportunity for you.

Feel free to message me if you have any questions:

This is a once in a lifetime opportunity for me and I am ecstatic at the thought of going. I’ve never met anyone who is in a situation similar to mine so the chance to spend three days getting to know people like me would be amazing! Not only that but hopefully I’ll be able to register for the health fair patient evaluation. I’ll get to consult with some of the top doctors in the CTD profession and hopefully get some insight. We are scrambling to make all of the necessary arrangements before the deadline. It’s going to be a stretch to come up with the money to register but like I said, this is a once in a lifetime chance. This is as close to B.C. as the conference is going to be for years.

Fingers crossed. Wishing everyone well.

“When one door of happiness closes, another opens; but often we look so long at the closed door that we do not see the one which has been opened for us.” -Helen Keller

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