A Chance At Better Vision?

Eever since my lens implants dislocated over a year ago and the corrective surgeries left my vision much less than what it used to be I’ve been searching for something that might help to restore it. I don’t get much help from my eye surgeon in this department. He seems to think that the fact that the lenses look good to him that they are good enough as is. Easy for him to say when he’s not the one that has to look through them all day everyday. I’m constantly squinting and trying to see around the double vision the surgery left me with in my left eye. When I read or look at the computer it feels like it’s just sitting there, not doing much, and not helping me to see. My right eye (which is for distance) isn’t helping much either. I can’t see the television or any street signs etc. without being at a close distance, where as before I could see things from afar.

Like I’ve mentioned before; I am thankful for the fact that I can see at all. But that doesn’t mean that I shouldn’t hope to have my sight improved. So I started researching possible surgeries or implants that may reverse the damage to no avail. Until one day when I wasn’t looking I stumbled on what might just be what I’d been hoping for; Accommodative Intraocular Lenses. These lens implants are made to move within the eye similar to the way a natural lens would move. By doing so they are able to ‘accommodate’ both near and distance vision. But the best part is that these lenses have a much lower chance of causing refractive errors in the vision and visual aberrations. Which means hopefully they could take away the double vision.

The bummer part of all this is; I may not be a candidate. See, the way that these lenses stay in place is by being implanted within the capsular bag where the natural lenses once were. The capsular bags in my eyes were removed when I was four, along with my lenses. I’m assuming this knocks my chances of receiving this surgery. Admittedly it was hard to swallow at first. I’d thought that I finally found the answer I was looking for. But it does make me wonder if in the near future there will be technology that allows these or similar lenses to be implanted in eyes like mine. I will talk to my optometrist about these implants just for information’s sake. I’m not in a big rush to get my vision back, just the hope that one day I will is enough for now.

Here is a link to a very helpful website detailing all there is to know about the different types of Intraocular Lens Implants, how they work, and how they’re implanted. 

{I am not a doctor and the medical definitions and descriptions featured in this blog post do not and should not replace those of a medical professional. They are merely there to help give an idea of my situation and experiences. If you are in need of medical advice see your doctor.}

3 thoughts on “A Chance At Better Vision?

  1. Hey Katie,
    I stumbled upon an old post. Oh, can I relate to the ocular/vision nightmare. Do you ever wonder why you are the one Googling late into the night on how to fix all that is wrong, and not your doctor? Haha. A couple of days before my CXL trial surgery in LA for keratoconus (KC), I met a man who was around 70 with KC. He didn’t have a CTD I presume (he asked if they knew what caused KC yet), not that I knew I had EDS then. He mentioned he’d had 4 corneal transplants over the years and eventually lost the vision in one eye, but the other eye was holding and he had 20/20 vision via an intraocular lens implanted in it. Obviously not the same story as yours as no lens removal, but if someone who had those horrid transplants way back when finally got lucky in even one eye, maybe there’s some hope. I do find more research goes into blinding eye diseases due to the we-feel-so-sorry-for-you factor and our FDA fast tracks the approval process of surgeries, etc. Let us hope, as I can’t see for beans!


    • I do very much hold out hope that one day there will be a way to give me back more of my vision. But, for now I’m just extremely grateful that I still have my lens implants, and terrified that they’ll dislocate again at any minute. Every time I wake up one of the first things I do is make sure I can still see, it’s stressful. But I’m so happy that for now they’re in place and that I can see as well as I can. It’s easier now that I’m used to the lesser vision. Before, adjusting to the new normal and mourning what I had just a little while ago was hard. I can’t wrap my mind around the fact that’s it’s already been 3 years since all of that happened!


      • Thanks for sharing! My rather quick vision loss/deterioration (I noticed it 9 mos before my Dx) didn’t hit me for a while, and now I’m a mess that this is normal, like you said, and that I can barely drive (don’t tell the DMV) and I’ll never pass the vision test again–or even get through WalMart or see faces! I think new things will come down the pipeline, but I just don’t how much of a candidate I am (or you are) as the CXL surgery had so many post-op issues–well, still having issues–and I know it’s due to EDS as CXL is so safe. Argh! I hear you about freaking out, even though my KC won’t make me blind overnight. I think losing your vision (even if not all of it) just steals even more control and leaves you with an uneasy feeling 24/7. Of course, if my doc were more helpful, I might feel more at peace. Round and round we go… Ugh! Fingers crossed…


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